A brief glimpse of our work.
ITP (Immune thrombocytopenia) & MG (Myasthenia Gravis)
■ ITP (Immune thrombocytopenia) is an autoimmune disease in which the immune system mistakes the platelets as being foreign and destroys them.
Prevalence: 3 per 100,000
■ MG (Myasthenia Gravis) is a neuromuscular disorder caused by an error in the transmission of nerve impulses to muscles. It occurs when normal communication between the nerve and muscle is interrupted at the neuromuscular junction.
Prevalence: 23 per 100,000
■ Sample size
ITP – Physician n=6, Patient n=2
MG – Physician n=6, Patient/caregiver n=8
■ Methodology
Patient/caregiver – All 75 min WATIS with online diary homework
Physicians – All 60 min WATIS with patient chart research
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IBD (Inflammatory Bowel Disease)
■ UC (Ulcerative colitis)
Prevalence: 133 per 100,000
■ Methodology
Physician n=6, Patient n=8 CLT
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CD (Crohn’s disease)
■ UC (Ulcerative colitis)
Prevalence: 32 per 100,000
■ Methodology
Physician n=6, Patient n=7 – All at the venue
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ALS (Amyotrophic Lateral Sclerosis)
■ UC (Ulcerative colitis)
Prevalence: 2.5 per 100,000
■ Methodology
Physician n=18, Caregiver n=8
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Blood Diseases
○ Hemophilia A
■ Methodology
Physician n=10, Patient/caregiver n=10
Research regarding blood derivatives, devices (video assignments + interviews)
○ AML (Acute myeloid leukemia)
■ Methodology
Physicians n=4, Patient/caregiver n=6
Diaries + Interviews
○ CML (Chronic myelogenous leukemia)
■ Methodology
Physician n=6, Patient n=6
○ CAR-T Therapy
■ Methodology
Physician n=6, Patient n=2
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Malignant tumors
■ Lung cancer + digestive system cancer (colon cancer, stomach cancer, pancreas cancer, liver cancer)
■ Methodology
Physician n=22, 16 Patients/caregiver n=16, Patient group n=4